I’ve lived with spina bifida my whole life. The thing is, I’ve never really gotten used to it. I wish that it could be something that I just come to terms with and move on, but in reality, dealing with it on an emotional level is identical to dealing with it on a physical level. It’s a day to day thing. Some days are awesome, and some days I think it would be awesome to be someone else. However, I have absolutely and unequivocally come to the conclusion that I do myself no favors by pretending that it isn’t there.
Since it is a part of who I am and what I deal with, I will occasionally blog about it. So, the facts:
- I have a type of spina bifida that is categorized as lipomyelomeningecele
- I have an ankle foot orthotic; aka: a brace
- I walk with a cane
Point 3 is something that will come up most often. I’m still trying to handle that. It is a fairly new development, only since January of 2002.